Thanks to our dear friend, 'Aunt Chow', the
Richter 4 packed up and headed to the Great Smokies for a long weekend and a
much needed respite.
It has been one week since we were diagnosed
and our emotions have run rampant - from angst and worry, disbelief and shock
to great sadness. I read recently that being diagnosed with a Special Needs
child, you will experience the five phases of grief. Grief because you are
‘mourning the loss of the family you longed for/dreamt of’.
I agree with feeling sadness. Sadness for what
our little one has to endure – appointment after appointment (almost daily), endless
medicines, hospital visits, tests, poking and prodding, surgeries, judgment,
ridicule, ignorance, etc. and no reprieve from our current lifestyle as far as
the eye can see. Sadness for his
brother, who pretends to mimic Mommy on the phone by saying, “I’m talking to
the doctors, Momma.” This is his norm. But the article offended me at the same
time. The word ‘mourn’ seems inappropriate…offensive. How could we mourn a
family we didn't know? This IS our family and while scary and not without its’
obstacles, this is what our family looks like and ‘mourning’ something that was
never intended for us seems ungrateful and insulting to our beautiful children.
Fortunately, the crisp mountain air was
therapeutic for us all. Baby Shaw welcomed the closeness of being nestled into
Mommy’s chest with each hike, while Michael had the chance to teach Nash a
little about the outdoors - something very important to us. For me, it was an
opportunity to reflect on where we are, the scary time ahead, the importance of
drawing on those close to us, the magnitude of living one day at a time and the
power and appreciation of a unified family.
One day at a time…
What a wonderful friend we have in Sara Clow. A
friendship spanning the globe - meeting in San Francisco, spending countless
blue bird days in Tahoe, sweaty hikes in Hong Kong, lying beachside in
Charleston to Thanksgiving toasts in Indonesia. Years later, here we are in the
Carolina mountains, cooking good food (very important to Clow - Grow Food Carolina plug!), enjoying a
toasty fire, getting outside, having nightly dance parties with Nash and
exhaling in the comfort of being with a good friend during a difficult time.
Thanks, Aunt Chow, for your endless support and over a decade of friendship.
Richters 4 - Ahhh...to be outside
Baby Shaw sound asleep 'in the woods'
(Shaw means 'in the woods')
Aunt Chow!!
1 comment:
Beautiful....absolutely beautiful!
-Andrea
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